Breaking Free

It was a very long day trying to keep Gordon in the bed and on the monitor! He is so strong, but I am so thankful. He went downstairs for his Lung Perfusion scan which he did very well for. Gordon has a VERY limited vocabulary of about 3 words. One of then being NO and the other being dada and mama. Last year when we were here he did not talk at all. This time he would call for mama anytime anything was going on that he was scared of. There are sometimes when I have to take a step back and let the doctors and nurses do what they have to and it just breaks my heart to hear him calling me in such a sad way:(

So we do not have Lung Percusion results in yet, but they let us be discussed and go back to the RMH. They will get in touch with is regarding those results tomorrow. 

Gordon was extremely agitated and honestly just completely out of control tonight. Please pray that he will not be fearful and not in any pain. Please also pray for patience and wisdom for Arnold and I in how to deal with him in this state under theses circumstances! It is so very hard to discipline your child after all he has been through when your just thankful he is here and able to be out of control. 

As always thank you for your endless love, support, and prayers. 

Here he is breaking free!

Here is our MIRACLE #1 :)

 

 

This is the Sasso family. Their son Ryder has the exact same heart defect as Gordon and he had his heart Cath today. Please pray he continues to have a smooth recovery. This family is so very special to us and we are very thankful we get to do this journey with them. Ryder's mom, Lila's mom, and I all planned our trip out here for the same time. Unfortunately Lila came done with a virus and was unable to make the trip. She will be coming in a few weeks so please keep these families in your prayers.